April 23, 2011 Maddie's Birthday Party at Mimi and Papaw's House

Today was Maddie's birthday party at Mimi and Papaw's house (Jason's parents). She has not had any seizure activity since April 20th, 2011 which was the actual day she turned 2, and it was a very lite seizure lasting less than 2 minutes with only a couple of head jerks. We are so very proud of her and she is progressing some everyday. We are now working on holding a sippy cup, which is going to take some work with her low muscle tone and getting her to hold it steady but we have to start somewhere. She is also sitting up so much better and has alot more trunk control, now she just has to learn to balance herself. She has slept alot today which I think has alot to do with her medicine but we still all had a great time. We are so blessed to have the support and love we do from our family and friends, and I don't know where we would be today without you yall. Mimi and Aunt Amy put together the cutest party with a farm animal theme which was adorable. We love you ALL so much and thank you ALL for everything. God bless you all and I hope you have a happy Easter!!

Maddie and the Easter bunny 4-20-11

HAPPY BIRTHDAY MADDIE GRACE!!

Today my sweet baby girl turns 2 years old. She has been though soo much in the past two years and yet she is still such a sweet happy angel. Mommy and daddy love you soo much baby and we are soo very proud of you. I don't know what I did before you but you make our lives whole. You are my heart and I love you soo much baby. HAPPY HAPPY BIRTHDAY MY SWEET BABY, WE LOVE YOU!!!
Below is Maddie on day of birth, 1 year birthday and 2nd birthday.

Maddie 2nd Birthday

Maddie's First birthday party

April 19th, 2011

Well, today has been a great day, Maddie has been babbling and playing like normal. Her birthday is tomorrow, I can't believe she is already two years old, oh how time flies. The last two years of our lives have been full of tears, stress, worry no doubt, but above all that we have had the joy of her smile, the sweet touch of her little fingers holding mine, her snuggled up on my shoulder, and her big beautiful blue eyes. I am so blessed and I can not even begin to tell you how much I love her. We have the best family that has been so supportive, and the best friends who are always there with a shoulder to cry on or arms wide open for a hug. We love you all and thank you so much.

Maddie's Story

My name is Becky and my daughter Madilyn Grace was diagnosed with Infantile Spasms when she was 8 months old. She will be 2 years old this Wednesday April 20th, 2011 and we are still trying to get them under control. She only has maybe one every week and a half or so but we are hoping they will stop completeing with age. She is currenting taking Depakote and Keppra to control them which seems to work for the most part. She is severly developmentally delayed becuase of the seizures but she also has low muscle which doesn't help. We work with her daily and she is progresing slowly but surely. She is my world and I am so blessed to have my sweet baby girl. She is a very happy baby and is very calm and content. Please pray with us that they soon find a cure for epilepsy and help spread the word for awareness.