Tuesday, July 26, 2011
Every day is a blessing
Maddie is doing so much better now. Her seizures have gone to what we call drop attacks, she drops her head quickly and looses her balance but even these are fading away day by day. God is Great!! She is progressing more every day and we are so very proud of her. She is so strong and such a motivation to me and anyone that meets her. She is eating food with a spoon three times a day, and drinking lots of juice. We are still working on getting her to drink plain water, and believe you me she knows the difference, smart girl. She now holds her arms up to be picked up and of course it works 'cause she is so cute and I can't resist, ha ha what can I say, I know she is spoiled. I waited a long time for her to use those arms and reach for me and it warms my heart every time she does. She is learning how to hold her bottle (which is a HUGE milestone) and I am tickled with joy. We are in the process of getting her a gate trainer, which will teach her to walk, but as for now we are just taking things day by day, one blessing at a time. She smiles all the time and is just the best baby, she is such a joy and I truly am blessed to be at home with her, she is my little companion, and I wouldn't have it any other way. Anyway, that's all for now, enjoy the photos below of some of her recent milestones. Thank you all for your thoughts and prayers! :-)
Wednesday, July 13, 2011
Where hope grows, Miracles will blossom!
Hello everyone, above is a video we recorded tonight of my sweet baby Maddie playing her keyboard. She is progressing more and more each day, and this was so awesome and I am so proud of her we wanted to share our joy with everyone else. She is having what we call head drops daily and we have no clue as to what may be causing these episodes or if they are anything to be concerned about. She recently had an 48 hour EEG that we hope will tell us if they are seizures or if they are even neurological. I will update as soon as we know something but I had to share this awesome video. Maddie is more alert, more playful and just generally happier since we have her off of Depakote, it may work for some, but is wasn't the medicine for her. Thank you all for your thoughts and prayers, we love you and God bless!
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