Wednesday, May 11, 2011

Maddie and her seizure monster

Well the last couple of days have not been very good here for my sweet Maddie, she had 3 seizure episodes yesterday (Tuesday) and 3 episodes today. However, she is a tough cookie and she fights through the episodes and continues to play and look at me with those big beautiful blue eyes and wonderful smile. I called her Neurologist and he increased her Keppra and put her on another Medication for the next three days. She is cutting her last four back teeth so he said the pain from that could be causing the increase in seizures, but we still are not sure what causes them, and may never know. Maddie has a MRI Saturday at Children's Hospital and maybe we will get some answers from that as to how quickly her brain is developing. Please help us pray that we can control her seizures and that they will stop on their own with time. The scared look in her eyes when she is having a seizure absolutely tears my heart apart because I can not stop them or take them upon myself. Please also pray for her for Saturday, she has to get anesthesia for the MRI and that always scares me. I will update with the MRI results as soon as I get them. Thank you all so much for your thoughts and prayers!

Wednesday, May 4, 2011

My precious baby is growing up


Hello everyone, I know it has been a little while since I updated this blog but in the wake of our state's most recent catastropy, the April's Fury tornadoes on April 27th, 2011, we have been trying to help in any way possible trying to help those in need. Please continue to pray for those families that lost their homes, their loved ones, their jobs, and any that were affected by this storm in any way possible. We are a strong state and we will pull together and help one another. There are alot of people working round the clock gathering supplies, removing debris, transporing supplies, and just trying to house the thousands that are homeless right now. Anyway, back to Maddie, she has been doing GREAT. Seizures are down to one every week if that and they are very lite not even lasting 5 minutes. I pray that they will stop completely soon as she gets older but we are blessed to have them somewhat under control. She is playing with toys now a little, just rubbing the toys and slapping them (its a start, i'm tickled), she sits up great on her knees and can play for about a minute at a time before she needs a break. She is eating so much better and is closing her mouth now when she eats which is awesome. She is cutting her last 4 teeth, then she will have a mouth full. This month we are starting water therapy in my mothers pool and at our local YMCA which I think will be great therapy for her, she loves splashing in the water. Thats about it for now, she is just progressing everyday and I am so very proud of her.